A Program of Research to Evaluate the Impact of Deceased Organ Donation Legislative Reform in Nova Scotia: The LEADDR Program

Matthew J. Weiss, Kristina Krmpotic, Tim Cyr, Sonny Dhanani, Mélanie Dieudé, Jade S. Dirk, David Hartell, Cynthia Isenor, Lee James, Amanda Lucas, Chelsea Patriquin, Christy Simpson, Victoria L. Sullivan, Karthik K. Tennankore, Jennifer Thurlow, Robin Urquhart, Hans Vorster, Stephen D. Beed

Research output: Contribution to journalArticlepeer-review

11 Citations (Scopus)

Abstract

Background. This is the first time deemed consent, where the entire population of a jurisdiction is considered to have consented for donation unless they have registered otherwise, will be implemented in North America. While relatively common in other regions of the world - notably Western Europe - it is uncertain how this practice will influence deceased donation practices and attitudes in Canada. Methods. We describe a Health Canada funded program of research that will evaluate the implementation process and full impact of the deceased organ donation legislation and the health system transformation in Nova Scotia that includes opt-out consent. Results. There is a need to evaluate the impact of these changes to inform not only Nova Scotia and Atlantic Canada, but also other provincial, national, and international stakeholders. Conclusions. We establish a rigorous academic framework that we will use to evaluate this significant health system transformation.

Original languageEnglish
Article numbere641
JournalTransplantation Direct
DOIs
Publication statusAccepted/In press - 2021

Bibliographical note

Publisher Copyright:
© 2021 Lippincott Williams and Wilkins. All rights reserved.

ASJC Scopus Subject Areas

  • Transplantation

PubMed: MeSH publication types

  • Journal Article

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