TY - JOUR
T1 - Accessing health care utilization databases for health research
T2 - A canadian longitudinal study on aging feasibility study
AU - Raina, Parminder S.
AU - Kirkland, Susan A.
AU - Wolfson, Christina
AU - Szala-Meneok, Karen
AU - Griffith, Lauren E.
AU - Keshavarz, Homa
AU - Uniat, Jennifer
AU - Furlini, Linda
AU - Angus, Camille L.
AU - Strople, Geoff
AU - Pelletier, Amélie
PY - 2009/9
Y1 - 2009/9
N2 - One of the keys to the success of the Canadian Longitudinal Study on Aging (CLSA) will be the leveraging of secondary data sources, particularly health care utilization (HCU) data. To examine the practical, methodological, and ethical aspects of accessing HCU data, one-on-one qualitative interviews were conducted with 53 data stewards and privacy commissioners/ombudsmen from across Canada. Study participants indicated that obtaining permission to access HCU data is generally possible; however, they noted that this will be a complex and lengthy process requiring considerable and meticulous preparatory work to ensure proper documentation and compliance with jurisdictional variations along legislative and policy lines.
AB - One of the keys to the success of the Canadian Longitudinal Study on Aging (CLSA) will be the leveraging of secondary data sources, particularly health care utilization (HCU) data. To examine the practical, methodological, and ethical aspects of accessing HCU data, one-on-one qualitative interviews were conducted with 53 data stewards and privacy commissioners/ombudsmen from across Canada. Study participants indicated that obtaining permission to access HCU data is generally possible; however, they noted that this will be a complex and lengthy process requiring considerable and meticulous preparatory work to ensure proper documentation and compliance with jurisdictional variations along legislative and policy lines.
UR - http://www.scopus.com/inward/record.url?scp=76649106788&partnerID=8YFLogxK
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U2 - 10.1017/S0714980809990079
DO - 10.1017/S0714980809990079
M3 - Article
C2 - 19860983
AN - SCOPUS:76649106788
SN - 0714-9808
VL - 28
SP - 287
EP - 294
JO - Canadian Journal on Aging
JF - Canadian Journal on Aging
IS - 3
ER -