Exploring the acceptability and feasibility of conducting a large longitudinal population-based study in Canada

Susan A. Kirkland, Parminder S. Raina, Christina Wolfson, Geoff Strople, Olga Kits, Steven Dukeshire, Camille L. Angus, Karen Szala-Meneok, Jennifer Uniat, Homa Keshavarz, Linda Furlini, Amélie Pelletier

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)

Abstract

Successful recruitment and retention for population-based longitudinal studies requires understanding facilitators and barriers to participation. This study explored Canadians views regarding one such study, the proposed Canadian Longitudinal Study on Aging (CLSA). Focus groups of participants ≥40 years of age were held in six proposed CLSA data collection sites (Halifax, Montreal, Hamilton, Winnipeg, Calgary, and Vancouver) to discuss participating in a long-term study of healthy aging. There was fundamental support for longitudinal research on health and aging. Altruism was a key motivation to participation, and universities were viewed as credible parties to conduct such studies. Participants had few worries about providing biological samples but expressed concern about potential misuse of genetic materials, commercialization of participant data, and privacy issues. These findings have already informed current, and will inform future, work on the CLSA, and will also provide useful information to researchers who undertake other population-based longitudinal studies.

Original languageEnglish
Pages (from-to)231-242
Number of pages12
JournalCanadian Journal on Aging
Volume28
Issue number3
DOIs
Publication statusPublished - Sept 2009

ASJC Scopus Subject Areas

  • Health(social science)
  • Gerontology
  • Community and Home Care
  • Geriatrics and Gerontology

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