‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents

Douglas L. Race; Joanie Sims-Gould; Lori B. Tucker; Ciaran M. Duffy; Debbie Ehrmann Feldman; Michele Gibbon; Kristin M. Houghton; Jennifer N. Stinson; Elizabeth Stringer; Shirley M.L. Tse; Heather A. McKay

doi:10.1177/1367493516632616

‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents

Douglas L. Race, Joanie Sims-Gould, Lori B. Tucker, Ciaran M. Duffy, Debbie Ehrmann Feldman, Michele Gibbon, Kristin M. Houghton, Jennifer N. Stinson, Elizabeth Stringer, Shirley M.L. Tse, Heather A. McKay

Medicine

Research output: Contribution to journal › Article › peer-review

21 Citations (Scopus)

Abstract

Our primary objective was to gather perspectives of children diagnosed with juvenile idiopathic arthritis (JIA) and their parents as they relate to physical activity (PA) participation. To do so, we conducted a study on 23 children diagnosed with JIA and their parents (N = 29). We used convenience sampling to recruit participants and qualitative method- logies (one-on-one semi-structured interviews). We adopted a five-step framework analysis to categorize data into themes. Children and their parents described factors that act to facilitate or hinder PA participation. Pain was the most commonly highlighted PA barrier described by children and their parents. However, children who were newly diagnosed with JIA and their parents were more likely to highlight pain as a barrier than were child/parent dyads where children had been previously diagnosed.

Original language	English
Pages (from-to)	428-436
Number of pages	9
Journal	Journal of Child Health Care
Volume	20
Issue number	4
DOIs	https://doi.org/10.1177/1367493516632616
Publication status	Published - Dec 1 2016

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Funding for this study was provided by the Canadian Institutes of Health Research (CIHR) PAF-107535.

Publisher Copyright:
© 2016, © The Author(s) 2016.

ASJC Scopus Subject Areas

Pediatrics, Perinatology, and Child Health
Pediatrics

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Race, D. L., Sims-Gould, J., Tucker, L. B., Duffy, C. M., Feldman, D. E., Gibbon, M., Houghton, K. M., Stinson, J. N., Stringer, E., Tse, S. M. L., & McKay, H. A. (2016). ‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents. Journal of Child Health Care, 20(4), 428-436. https://doi.org/10.1177/1367493516632616

Race, DL, Sims-Gould, J, Tucker, LB, Duffy, CM, Feldman, DE, Gibbon, M, Houghton, KM, Stinson, JN, Stringer, E, Tse, SML & McKay, HA 2016, '‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents', Journal of Child Health Care, vol. 20, no. 4, pp. 428-436. https://doi.org/10.1177/1367493516632616

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abstract = "Our primary objective was to gather perspectives of children diagnosed with juvenile idiopathic arthritis (JIA) and their parents as they relate to physical activity (PA) participation. To do so, we conducted a study on 23 children diagnosed with JIA and their parents (N = 29). We used convenience sampling to recruit participants and qualitative method- logies (one-on-one semi-structured interviews). We adopted a five-step framework analysis to categorize data into themes. Children and their parents described factors that act to facilitate or hinder PA participation. Pain was the most commonly highlighted PA barrier described by children and their parents. However, children who were newly diagnosed with JIA and their parents were more likely to highlight pain as a barrier than were child/parent dyads where children had been previously diagnosed.",

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‘It might hurt, but you have to push through the pain’: Perspectives on physical activity from children with juvenile idiopathic arthritis and their parents

Abstract

Bibliographical note

ASJC Scopus Subject Areas

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