Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status

Ian McDowell; G. Hill; J. Lindsay; B. Kristjansson; B. Helliwell; N. Chappell; H. Tuokko; B. L. Beattie; H. Feldman; D. Sadovnick; G. Gutman; D. B. Hogan; R. Bland; P. McCracken; S. Newman; A. Dobbs; C. D'Arcy; J. Manfreda; P. Montgomery; L. Strain; T. Østbye; R. Steenhuis; V. Hachinski; L. Chambers; P. Raina; C. Cohen; A. Colantonio; V. Marshall; G. Snow; J. Kozak; S. Gauthier; C. Wolfson; H. Bergman; M. Panisset; B. Ska; M. J. Kergoat; Y. Joanette; R. Hébert; R. Verreault; P. Durand; J. Morin; M. Morin; R. Bouchard; D. Gauvreau; I. Fortier; C. Balram; K. Rockwood; J. Graham; J. Fisk; C. MacKnight; T. Nilsson; D. Pedlar; S. Buehler; A. Kozma

doi:10.1093/geront/42.5.643

Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status

Ian McDowell, G. Hill, J. Lindsay, B. Kristjansson, B. Helliwell, N. Chappell, H. Tuokko, B. L. Beattie, H. Feldman, D. Sadovnick, G. Gutman, D. B. Hogan, R. Bland, P. McCracken, S. Newman, A. Dobbs, C. D'Arcy, J. Manfreda, P. Montgomery, L. StrainT. Østbye, R. Steenhuis, V. Hachinski, L. Chambers, P. Raina, C. Cohen, A. Colantonio, V. Marshall, G. Snow, J. Kozak, S. Gauthier, C. Wolfson, H. Bergman, M. Panisset, B. Ska, M. J. Kergoat, Y. Joanette, R. Hébert, R. Verreault, P. Durand, J. Morin, M. Morin, R. Bouchard, D. Gauvreau, I. Fortier, C. Balram, K. Rockwood, J. Graham, J. Fisk, C. MacKnight, T. Nilsson, D. Pedlar, S. Buehler, A. Kozma

Research output: Contribution to journal › Article › peer-review

41 Citations (Scopus)

Abstract

Purpose: To link changes over 5 years in the health, vital and residential status of very elderly people to changes in their family caregivers' health. Design and Methods: Canadian population -based, longitudinal study including community and institutional residents. From interviews and clinical examinations, 948 people (mean age = 86 years) were classified as demented, frail, or healthy at two points in time. Caregivers reported on the care they provided and their health outcomes. Results: Diagnostic and residential groups of care recipients differed significantly in their level of activity of daily living/instrumental activity of daily living disability (range = 0.2 problems for the healthy group, 10-12 in the dementia groups) and in the amount of assistance received; caregiver burden scores were higher for people with dementia in the community than for those in institutions (p < .001). However, these differences did not translate directly into contrasts in caregiver health. Caregivers of healthy elders reported fewer health problems than did caregivers for people with dementia or frailty, but the latter groups did not differ significantly. Death of the care recipient and admission to institutional care did not have a consistent impact on caregiver health. Implications: The relationship between caregiver load and health outcomes is complex and dynamic; treatments that slow the progression of dementia will not necessarily relieve caregiver strain.

Original language	English
Pages (from-to)	643-652
Number of pages	10
Journal	The Gerontologist
Volume	42
Issue number	5
DOIs	https://doi.org/10.1093/geront/42.5.643
Publication status	Published - Oct 2002
Externally published	Yes

ASJC Scopus Subject Areas

Gerontology
Geriatrics and Gerontology

PubMed: MeSH publication types

Journal Article
Research Support, Non-U.S. Gov't

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McDowell, I., Hill, G., Lindsay, J., Kristjansson, B., Helliwell, B., Chappell, N., Tuokko, H., Beattie, B. L., Feldman, H., Sadovnick, D., Gutman, G., Hogan, D. B., Bland, R., McCracken, P., Newman, S., Dobbs, A., D'Arcy, C., Manfreda, J., Montgomery, P., ... Kozma, A. (2002). Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status. The Gerontologist, 42(5), 643-652. https://doi.org/10.1093/geront/42.5.643

McDowell, I, Hill, G, Lindsay, J, Kristjansson, B, Helliwell, B, Chappell, N, Tuokko, H, Beattie, BL, Feldman, H, Sadovnick, D, Gutman, G, Hogan, DB, Bland, R, McCracken, P, Newman, S, Dobbs, A, D'Arcy, C, Manfreda, J, Montgomery, P, Strain, L, Østbye, T, Steenhuis, R, Hachinski, V, Chambers, L, Raina, P, Cohen, C, Colantonio, A, Marshall, V, Snow, G, Kozak, J, Gauthier, S, Wolfson, C, Bergman, H, Panisset, M, Ska, B, Kergoat, MJ, Joanette, Y, Hébert, R, Verreault, R, Durand, P, Morin, J, Morin, M, Bouchard, R, Gauvreau, D, Fortier, I, Balram, C, Rockwood, K, Graham, J, Fisk, J, MacKnight, C, Nilsson, T, Pedlar, D, Buehler, S & Kozma, A 2002, 'Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status', The Gerontologist, vol. 42, no. 5, pp. 643-652. https://doi.org/10.1093/geront/42.5.643

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title = "Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status",

abstract = "Purpose: To link changes over 5 years in the health, vital and residential status of very elderly people to changes in their family caregivers' health. Design and Methods: Canadian population -based, longitudinal study including community and institutional residents. From interviews and clinical examinations, 948 people (mean age = 86 years) were classified as demented, frail, or healthy at two points in time. Caregivers reported on the care they provided and their health outcomes. Results: Diagnostic and residential groups of care recipients differed significantly in their level of activity of daily living/instrumental activity of daily living disability (range = 0.2 problems for the healthy group, 10-12 in the dementia groups) and in the amount of assistance received; caregiver burden scores were higher for people with dementia in the community than for those in institutions (p < .001). However, these differences did not translate directly into contrasts in caregiver health. Caregivers of healthy elders reported fewer health problems than did caregivers for people with dementia or frailty, but the latter groups did not differ significantly. Death of the care recipient and admission to institutional care did not have a consistent impact on caregiver health. Implications: The relationship between caregiver load and health outcomes is complex and dynamic; treatments that slow the progression of dementia will not necessarily relieve caregiver strain.",

author = "Ian McDowell and G. Hill and J. Lindsay and B. Kristjansson and B. Helliwell and N. Chappell and H. Tuokko and Beattie, {B. L.} and H. Feldman and D. Sadovnick and G. Gutman and Hogan, {D. B.} and R. Bland and P. McCracken and S. Newman and A. Dobbs and C. D'Arcy and J. Manfreda and P. Montgomery and L. Strain and T. {\O}stbye and R. Steenhuis and V. Hachinski and L. Chambers and P. Raina and C. Cohen and A. Colantonio and V. Marshall and G. Snow and J. Kozak and S. Gauthier and C. Wolfson and H. Bergman and M. Panisset and B. Ska and Kergoat, {M. J.} and Y. Joanette and R. H{\'e}bert and R. Verreault and P. Durand and J. Morin and M. Morin and R. Bouchard and D. Gauvreau and I. Fortier and C. Balram and K. Rockwood and J. Graham and J. Fisk and C. MacKnight and T. Nilsson and D. Pedlar and S. Buehler and A. Kozma",

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T2 - The impact of changing cognitive and residential status

AU - McDowell, Ian

AU - Hill, G.

AU - Lindsay, J.

AU - Kristjansson, B.

AU - Helliwell, B.

AU - Chappell, N.

AU - Tuokko, H.

AU - Beattie, B. L.

AU - Feldman, H.

AU - Sadovnick, D.

AU - Gutman, G.

AU - Hogan, D. B.

AU - Bland, R.

AU - McCracken, P.

AU - Newman, S.

AU - Dobbs, A.

AU - D'Arcy, C.

AU - Manfreda, J.

AU - Montgomery, P.

AU - Strain, L.

AU - Østbye, T.

AU - Steenhuis, R.

AU - Hachinski, V.

AU - Chambers, L.

AU - Raina, P.

AU - Cohen, C.

AU - Colantonio, A.

AU - Marshall, V.

AU - Snow, G.

AU - Kozak, J.

AU - Gauthier, S.

AU - Wolfson, C.

AU - Bergman, H.

AU - Panisset, M.

AU - Ska, B.

AU - Kergoat, M. J.

AU - Joanette, Y.

AU - Hébert, R.

AU - Verreault, R.

AU - Durand, P.

AU - Morin, J.

AU - Morin, M.

AU - Bouchard, R.

AU - Gauvreau, D.

AU - Fortier, I.

AU - Balram, C.

AU - Rockwood, K.

AU - Graham, J.

AU - Fisk, J.

AU - MacKnight, C.

AU - Nilsson, T.

AU - Pedlar, D.

AU - Buehler, S.

AU - Kozma, A.

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Patterns and health effects of caring for people with dementia: The impact of changing cognitive and residential status

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