TY - JOUR
T1 - The Canadian Biliary Atresia Registry
T2 - Improving the care of Canadian infants with biliary atresia
AU - Canadian Biliary Atresia Registry
AU - Butler, Alison E.
AU - Schreiber, Richard A.
AU - Yanchar, Natalie
AU - Emil, Sherif
AU - Laberge, Jean Martin
AU - Jimenez-Rivera, Carolina
AU - Cameron, Brian
AU - Martin, Steven
AU - Anthopoulos, George
AU - Ahmed, Najma
N1 - Publisher Copyright:
© 2016 Pulsus Group Inc. All rights reserved.
PY - 2016/4
Y1 - 2016/4
N2 - Biliary atresia is the most common cause of end-stage liver disease and liver cirrhosis in children, and the leading indication for liver transplantation in the paediatric population. There is no cure for biliary atresia; however, timely diagnosis and early infant age at surgical intervention using the Kasai portoenterostomy optimize the prognosis. Late referral is a significant problem in Canada and elsewhere. There is also a lack of standardized care practices among treating centres in this country. Biliary atresia registries currently exist across Europe, Asia and the United States. They have provided important evidence-based information to initiate changes to biliary atresia care in their countries with improvements in outcome. The Canadian Biliary Atresia Registry was initiated in 2013 for the purpose of identifying best standards of care, enhancing public education, facilitating knowledge translation and advocating for novel national public health policy programs to improve the outcomes of Canadian infants with biliary atresia.
AB - Biliary atresia is the most common cause of end-stage liver disease and liver cirrhosis in children, and the leading indication for liver transplantation in the paediatric population. There is no cure for biliary atresia; however, timely diagnosis and early infant age at surgical intervention using the Kasai portoenterostomy optimize the prognosis. Late referral is a significant problem in Canada and elsewhere. There is also a lack of standardized care practices among treating centres in this country. Biliary atresia registries currently exist across Europe, Asia and the United States. They have provided important evidence-based information to initiate changes to biliary atresia care in their countries with improvements in outcome. The Canadian Biliary Atresia Registry was initiated in 2013 for the purpose of identifying best standards of care, enhancing public education, facilitating knowledge translation and advocating for novel national public health policy programs to improve the outcomes of Canadian infants with biliary atresia.
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M3 - Review article
AN - SCOPUS:84962803010
SN - 1205-7088
VL - 21
SP - 131
EP - 134
JO - Paediatrics and Child Health
JF - Paediatrics and Child Health
IS - 3
ER -