Abstract
Objective: To extend our understanding of self-management by using original data and a recent concept analysis to propose a unifying framework for self-management strategies. Methods: Longitudinal interview data with 117 people with neurological conditions were used to test a preliminary framework derived from the literature. Statements from the interviews were sorted according to the predefined categories of the preliminary framework to investigate the fit between the framework and the qualitative data. Data on frequencies of strategies complemented the qualitative analysis. Results: The Taxonomy of Every Day Self-management Strategies (TEDSS) Framework includes five Goal-oriented Domains (Internal, Social Interaction, Activities, Health Behaviour and Disease Controlling), and two additional Support-oriented Domains (Process and Resource). The Support-oriented Domain strategies (such as information seeking and health navigation) are not, in and of themselves, goal focused. Instead, they underlie and support the Goal-oriented Domain strategies. Together, the seven domains create a comprehensive and unified framework for understanding how people with neurological conditions self-manage all aspects of everyday life. Conclusions: The resulting TEDSS Framework provides a taxonomy that has potential to resolve conceptual confusion within the field of self-management science. Practice Implications: The TEDSS Framework may help to guide health service delivery and research.
Original language | English |
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Pages (from-to) | 367-375 |
Number of pages | 9 |
Journal | Patient Education and Counseling |
Volume | 102 |
Issue number | 2 |
DOIs | |
Publication status | Published - Feb 2019 |
Bibliographical note
Funding Information:This study was part of the National Population Health Study of Neurological Conditions funded by the Public Health Agency of Canada ( https://www.canada.ca/en/publichealth/services/chronic-diseases/neurological-conditions/national-population-health-study-neurological-conditions-funded-projects.html ) (TP, GW, GK). Additional funds were provided by the Nova Scotia Health Research Foundation ( https://www.nshrf.ca/funding ) (TP, GW, GK) and the Swedish Association of Persons with Neurological Disabilities ( http://neuroforbundet.se/forskning/ ) (ÅA). The opinions expressed in this publication are those of the authors/researchers, and do not necessarily reflect the official views of the Public Health Agency of Canada, the Nova Scotia Health Research Foundation, or the Swedish Association of Persons with Neurological Disabilities.
Funding Information:
This study was part of the National Population Health Study of Neurological Conditions funded by the Public Health Agency of Canada (https://www.canada.ca/en/publichealth/services/chronic-diseases/neurological-conditions/national-population-health-study-neurological-conditions-funded-projects.html) (TP, GW, GK). Additional funds were provided by the Nova Scotia Health Research Foundation (https://www.nshrf.ca/funding) (TP, GW, GK) and the Swedish Association of Persons with Neurological Disabilities (http://neuroforbundet.se/forskning/) (ÅA). The opinions expressed in this publication are those of the authors/researchers, and do not necessarily reflect the official views of the Public Health Agency of Canada, the Nova Scotia Health Research Foundation, or the Swedish Association of Persons with Neurological Disabilities.
Publisher Copyright:
© 2018 The Authors
ASJC Scopus Subject Areas
- General Medicine