‘Who is on your health-care team?’ Asking individuals with heart failure about care team membership and roles

the Heart Failure/Palliative Care Teamwork Research Group

Producción científica: Contribución a una revistaArtículorevisión exhaustiva

32 Citas (Scopus)

Resumen

Background: Complex, chronically ill patients require interprofessional teams to address their multiple health needs; heart failure (HF) is an iconic example of this growing problem. While patients are the common denominator in interprofessional care teams, patients have not explicitly informed our understanding of team composition and function. Their perspectives are crucial for improving quality, patient-centred care. Objectives: To explore how individuals with HF conceptualize their care team, and perceive team members' roles. Setting and Participants: Individuals with advanced HF were recruited from five cities in three Canadian provinces. Design: Individuals were asked to identify their HF care team during semi-structured interviews. Team members' titles and roles, quotes pertaining to team composition and function, and frailty criteria were extracted and analysed using descriptive statistics and content analysis. Results: A total of 62 individuals with HF identified 2–19 team members. Caregivers, nurses, family physicians and cardiologists were frequently identified; teams also included dentists, foot care specialists, drivers, housekeepers and spiritual advisors. Most individuals met frailty criteria and described participating in self-management. Discussion: Individuals with HF perceived being active participants, not passive recipients, of care. They identified teams that were larger and more diverse than traditional biomedical conceptualizations. However, the nature and importance of team members' roles varied according to needs, relationships and context. Patients' degree of agency was negotiated within this context, causing multiple, sometimes conflicting, responses. Conclusion: Ignoring the patient's role on the care team may contribute to fragmented care. However, understanding the team through the patient's lens – and collaborating meaningfully among identified team members – may improve health-care delivery.

Idioma originalEnglish
Páginas (desde-hasta)198-210
Número de páginas13
PublicaciónHealth Expectations
Volumen20
N.º2
DOI
EstadoPublished - abr. 1 2017

Nota bibliográfica

Funding Information:
The authors received financial support for the research of this article from the Canadian Institutes for Health Research (CIHR) and the American Medical Association of Southwestern Ontario (AMOSO). We would like to thank Noordeep Panesar and Ruby Rai for their assistance with data extraction and analysis. We would also like to thank Ms. Sonya Cuprjak for her assistance with manuscript preparation and submission.

Publisher Copyright:
© 2016 The Authors. Health Expectations Published by John Wiley & Sons Ltd.

ASJC Scopus Subject Areas

  • Public Health, Environmental and Occupational Health

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