Development of a Self-Report Measure of Loneliness for Autistic Adults Using PROMIS Guidelines

Loneliness is common among autistic adults, often leading to worse mental health, physical health and quality of life outcomes. However, researchers and clinicians currently do not have an autism-specific tool to assess loneliness that captures the unique experiences of people with autism.

This study aims to develop and evaluate a self-reported measure of loneliness for autistic adults that will be accessible for those with mild to moderate intellectual disability. The tool will be incorporated into an ongoing 30-year longtiudinal study to help researchers better understand how major life transitions affect loneliness, social connection and well-being in autistic adults.