Bad News about Bad News: The Disclosure of Risks to Insurability in Research Consent Processes

Victoria Smith Apold, Jocelyn Downie

Résultat de recherche: Articleexamen par les pairs

12 Citations (Scopus)

Résumé

One of the phenomena associated with research is “incidental findings,” that is, unexpected findings made during the research, and outside the scope of the research, which have potential health importance. One underappreciated risk of incidental findings is the potential loss of the research subject's insurability; or if a research subject fails to disclose incidental findings when applying for insurance, the insurance contract may be voidable by the insurer. In this article, we seek to explain the insurability risks associated with incidental findings and to make recommendations for how researchers and research ethics committees should address the issue of disclosure of these risks.

Langue d'origineEnglish
Pages (de-à)31-44
Nombre de pages14
JournalAccountability in Research
Volume18
Numéro de publication1
DOI
Statut de publicationPublished - 2011

Note bibliographique

Funding Information:
17. The TCPS is the document which establishes the standards for research ethics for research conducted in institutions receiving funding from one or more of the Canadian Institutes of Health Research, the Natural Sciences and Engineering Research Council, and the Social Sciences and Humanities Research Council. The goal is “to promote the ethical conduct of research involving human subjects” (TCPS, Introduction).

Funding Information:
The authors are grateful to the Institute of Neurosciences, Mental Health and Addiction (INMHA) of the Canadian Institutes of Health Research (CIHR) for their generous financial support through the Neuroethics New Emerging Team (NET) grant. The authors would like to thank Lorraine Lafferty for her comments on an earlier version of this article.

Publisher Copyright:
© 2011, Copyright Taylor & Francis Group, LLC.

ASJC Scopus Subject Areas

  • Education
  • Library and Information Sciences

PubMed: MeSH publication types

  • Journal Article
  • Research Support, Non-U.S. Gov't

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