Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

Heather L. Stuckey; Christine Mullan-Jensen; Sanjay Kalra; Jean Reading; Johan Wens; Michael Vallis; Andrzej Kokoszka; Rachid Malek; Katharina Kovacs Burns; Natalia Piana; Søren E. Skovlund; Mark Peyrot

doi:10.1016/j.diabres.2016.04.028

Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

Heather L. Stuckey, Christine Mullan-Jensen, Sanjay Kalra, Jean Reading, Johan Wens, Michael Vallis, Andrzej Kokoszka, Rachid Malek, Katharina Kovacs Burns, Natalia Piana, Søren E. Skovlund, Mark Peyrot

Medicine

Medicine

Résultat de recherche: Article › examen par les pairs

14 Citations (Scopus)

Résumé

Aims: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes. Methods: Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects. Results: Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier. Conclusions: These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.

Langue d'origine	English
Pages (de-à)	270-278
Nombre de pages	9
Journal	Diabetes Research and Clinical Practice
Volume	116
DOI	https://doi.org/10.1016/j.diabres.2016.04.028
Statut de publication	Published - juin 1 2016

Note bibliographique

Funding Information:
H.L.S. has received compensation from Novo Nordisk for developing the DAWN2 coding scheme, training/supervising coders, and conducting qualitative analysis, as well as travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. C.M-J. was, at the time of the study, an employee of Novo Nordisk. S.K. has received travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. J.R. has received funds from Novo Nordisk for conducting the coding of qualitative data. J.W. has received funding for travel and accommodation to attend DAWN2 planning meetings, but has not received any fee for this work. M.V. has received research funding from AbbVie Inc and Pfizer Inc, and speaking honoraria from AbbVie; Bayer Pharmaceuticals Corp; Becton, Dickinson, and Co; Merck & Co, Inc; Novo Nordisk; and The Sanofi-Aventis Group. A.K. has received grants, speaking honoraria, and travel expenses from Novo Nordisk; and funding for research from Krka (Poland), Otsuka Pharmaceutical Co, Ltd, and Sumitomo Dainippon Pharma. R.M. is a member of advisory boards for Novo Nordisk, Sanofi and MSD and a speaker for Novo Nordisk, Sanofi, Pfizer and Bayer. K.K.B. has been reimbursed for travel and accommodation expenses from Novo Nordisk to attend the DAWN2 International Publication Planning Committee, but has not received any fee for this work from Novo Nordisk. N.P. has no conflicts of interest to disclose. S.E.S. is an employee of Novo Nordisk A/S, Copenhagen, Denmark. M.P. has received research grants and/or consulting fees from AstraZeneca, Bristol-Myers Squibb/Amylin, Calibra, Eli Lilly, Novo Nordisk, and Roche/Genentech; speaking honoraria from Novo Nordisk; and financial support from Novo Nordisk for his participation as the principal investigator of the DAWN2 study; and he has participated on advisory panels of Eli Lilly, GlaxoSmithKline, and Novo Nordisk.

Funding Information:
Novo Nordisk funded the DAWN2 study, including planning and designing in collaboration with national, regional and global partners. Novo Nordisk funded medical editing support by Bioscript Medical Ltd and independent data collection by Harris Interactive.

Publisher Copyright:
© 2016.

ASJC Scopus Subject Areas

Internal Medicine
Endocrinology, Diabetes and Metabolism
Endocrinology

ODD de l’ONU

Cette action contribue à la réalisation des objectifs de développement durable suivants

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10.1016/j.diabres.2016.04.028

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Stuckey, H. L., Mullan-Jensen, C., Kalra, S., Reading, J., Wens, J., Vallis, M., Kokoszka, A., Malek, R., Kovacs Burns, K., Piana, N., Skovlund, S. E., & Peyrot, M. (2016). Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study. Diabetes Research and Clinical Practice, 116, 270-278. https://doi.org/10.1016/j.diabres.2016.04.028

Stuckey, HL, Mullan-Jensen, C, Kalra, S, Reading, J, Wens, J, Vallis, M, Kokoszka, A, Malek, R, Kovacs Burns, K, Piana, N, Skovlund, SE & Peyrot, M 2016, 'Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study', Diabetes Research and Clinical Practice, vol. 116, pp. 270-278. https://doi.org/10.1016/j.diabres.2016.04.028

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title = "Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study",

abstract = "Aims: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes. Methods: Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects. Results: Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier. Conclusions: These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.",

author = "Stuckey, {Heather L.} and Christine Mullan-Jensen and Sanjay Kalra and Jean Reading and Johan Wens and Michael Vallis and Andrzej Kokoszka and Rachid Malek and {Kovacs Burns}, Katharina and Natalia Piana and Skovlund, {S{\o}ren E.} and Mark Peyrot",

note = "Funding Information: H.L.S. has received compensation from Novo Nordisk for developing the DAWN2 coding scheme, training/supervising coders, and conducting qualitative analysis, as well as travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. C.M-J. was, at the time of the study, an employee of Novo Nordisk. S.K. has received travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. J.R. has received funds from Novo Nordisk for conducting the coding of qualitative data. J.W. has received funding for travel and accommodation to attend DAWN2 planning meetings, but has not received any fee for this work. M.V. has received research funding from AbbVie Inc and Pfizer Inc, and speaking honoraria from AbbVie; Bayer Pharmaceuticals Corp; Becton, Dickinson, and Co; Merck & Co, Inc; Novo Nordisk; and The Sanofi-Aventis Group. A.K. has received grants, speaking honoraria, and travel expenses from Novo Nordisk; and funding for research from Krka (Poland), Otsuka Pharmaceutical Co, Ltd, and Sumitomo Dainippon Pharma. R.M. is a member of advisory boards for Novo Nordisk, Sanofi and MSD and a speaker for Novo Nordisk, Sanofi, Pfizer and Bayer. K.K.B. has been reimbursed for travel and accommodation expenses from Novo Nordisk to attend the DAWN2 International Publication Planning Committee, but has not received any fee for this work from Novo Nordisk. N.P. has no conflicts of interest to disclose. S.E.S. is an employee of Novo Nordisk A/S, Copenhagen, Denmark. M.P. has received research grants and/or consulting fees from AstraZeneca, Bristol-Myers Squibb/Amylin, Calibra, Eli Lilly, Novo Nordisk, and Roche/Genentech; speaking honoraria from Novo Nordisk; and financial support from Novo Nordisk for his participation as the principal investigator of the DAWN2 study; and he has participated on advisory panels of Eli Lilly, GlaxoSmithKline, and Novo Nordisk. Funding Information: Novo Nordisk funded the DAWN2 study, including planning and designing in collaboration with national, regional and global partners. Novo Nordisk funded medical editing support by Bioscript Medical Ltd and independent data collection by Harris Interactive. Publisher Copyright: {\textcopyright} 2016.",

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doi = "10.1016/j.diabres.2016.04.028",

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T2 - Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

AU - Stuckey, Heather L.

AU - Mullan-Jensen, Christine

AU - Kalra, Sanjay

AU - Reading, Jean

AU - Wens, Johan

AU - Vallis, Michael

AU - Kokoszka, Andrzej

AU - Malek, Rachid

AU - Kovacs Burns, Katharina

AU - Piana, Natalia

AU - Skovlund, Søren E.

AU - Peyrot, Mark

N1 - Funding Information: H.L.S. has received compensation from Novo Nordisk for developing the DAWN2 coding scheme, training/supervising coders, and conducting qualitative analysis, as well as travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. C.M-J. was, at the time of the study, an employee of Novo Nordisk. S.K. has received travel reimbursement from Novo Nordisk for DAWN-related presentations and meetings. J.R. has received funds from Novo Nordisk for conducting the coding of qualitative data. J.W. has received funding for travel and accommodation to attend DAWN2 planning meetings, but has not received any fee for this work. M.V. has received research funding from AbbVie Inc and Pfizer Inc, and speaking honoraria from AbbVie; Bayer Pharmaceuticals Corp; Becton, Dickinson, and Co; Merck & Co, Inc; Novo Nordisk; and The Sanofi-Aventis Group. A.K. has received grants, speaking honoraria, and travel expenses from Novo Nordisk; and funding for research from Krka (Poland), Otsuka Pharmaceutical Co, Ltd, and Sumitomo Dainippon Pharma. R.M. is a member of advisory boards for Novo Nordisk, Sanofi and MSD and a speaker for Novo Nordisk, Sanofi, Pfizer and Bayer. K.K.B. has been reimbursed for travel and accommodation expenses from Novo Nordisk to attend the DAWN2 International Publication Planning Committee, but has not received any fee for this work from Novo Nordisk. N.P. has no conflicts of interest to disclose. S.E.S. is an employee of Novo Nordisk A/S, Copenhagen, Denmark. M.P. has received research grants and/or consulting fees from AstraZeneca, Bristol-Myers Squibb/Amylin, Calibra, Eli Lilly, Novo Nordisk, and Roche/Genentech; speaking honoraria from Novo Nordisk; and financial support from Novo Nordisk for his participation as the principal investigator of the DAWN2 study; and he has participated on advisory panels of Eli Lilly, GlaxoSmithKline, and Novo Nordisk. Funding Information: Novo Nordisk funded the DAWN2 study, including planning and designing in collaboration with national, regional and global partners. Novo Nordisk funded medical editing support by Bioscript Medical Ltd and independent data collection by Harris Interactive. Publisher Copyright: © 2016.

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N2 - Aims: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes. Methods: Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects. Results: Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier. Conclusions: These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.

AB - Aims: The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes. Methods: Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects. Results: Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier. Conclusions: These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.

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ER -

Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study

Résumé

Note bibliographique

ASJC Scopus Subject Areas

ODD de l’ONU

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