Measuring disease-specific quality of life in rare populations: A practical approach to cross-cultural translation

Victoria E. Price, Robert J. Klaassen, Paula H.B. Bolton-Maggs, John D. Grainger, Christine Curtis, Cindy Wakefield, Gustavo Dufort, Arne Riedlinger, Christophe Soltner, Victor S. Blanchette, Nancy L. Young