Models of biobanks and implications for reproductive health innovation

Résultat de recherche: Articleexamen par les pairs

7 Citations (Scopus)

Résumé

Biobanks are designed with particular purposes in mind. These purposes are reflected in the governance frameworks that define the conditions for participation and access by researchers. In this paper, I analyse two different models: the commercially aligned deCODE biobank and the 'public good' framework of UK Biobank. These diametric models have both featured 'the public interest' as pivotal to their achievements. However, if properly understood, the public interest rhetoric of deCODE actually conflicts with any professed community interest. The reasons why are explained, and the effects this has on conditions for participation are critiqued, before reflecting on how each model might have an impact on reproductive health research.

Langue d'origineEnglish
Pages (de-à)238-257
Nombre de pages20
JournalMonash bioethics review
Volume33
Numéro de publication4
DOI
Statut de publicationPublished - déc. 1 2015

ASJC Scopus Subject Areas

  • General Medicine

PubMed: MeSH publication types

  • Journal Article
  • Randomized Controlled Trial

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